CARE DATA or HSCIC
With effect from 20th January 2014, every household in the south will receive a leaflet entitled ‘Better Information means better care’. The leaflet explains how the NHS will extract data from your personal medical records to help us understand the health needs of everyone and the quality of the treatment and care provided. It will also help researchers identify patterns of diseases, responses to different treatments and the effectiveness of different services.
Please take the time to read the leaflet posted through your letterbox or pick up a copy from the surgery. If you are happy for your information to be used in this way you do not have to do anything. Further information and a list of common questions can be found at www.nhs.uk/caredata. If you do not wish your information to be used please complete an ‘opt out’ form which you can obtain from the surgery.
Care.Data or HSCIC
NHS has some of the best information systems in the world, and has been collecting information about every hospital admission, nationwide but there are significant gaps and as a result it is not currently possible to see a complete picture of the care that individuals receive. NHS England has commissioned Care.Data to address these gaps.
Care.Data will use data for purposes other than direct care. Care.Datawillextract coded data from all care settings to ensure commissioners and providers obtain a more complete and balanced picture of the care being delivered to patients and service users to address variations in the quality, efficiency and equity of health and social care service provision. The aim of Care.Data is to ensure the best possible evidence is available to improve the quality of care for all.
The data to be extracted from GP systems for Care.Data includes information such as family history, vaccinations, diagnoses, referrals, biological values (such as blood pressure, BMI and cholesterol with QOF exceptions codes) and all NHS prescriptions. Identifiers (DOB, postcode, NHS number and gender) are required to link the GP data with PCD (personal confidential data) from other settings in order to analyse patient care across pathways. Free text will not be included in the Care.Data extract.
If a patient has opted out of having a SCR then this preference will NOT automatically apply to Care.Data extractions. If a patient wishes to both opt out of the SCR and to prevent personal confidential data from being used for wider purposes beyond their care, then GPs should apply both the SCR dissent code and the objection code(s) detailed in the Care.Date guidance.
There are two types of information sharing patients can object to:
- Patients can object to Primary Care Data leaving the GP practice for purposes beyond direct care. This type of objection will prevent the information held in your GP record from being sent to the HSCIC secure environment and also by those who have gained special approval to use health information for research.
- Patients can object to Primary Care Data leaving the HSCIC secure environment. This includes information from all places you receive care such as hospitals. If you do not object, information that identifies you will only leave the HSCIC in limited circumstances and only with special legal approval. If you object, confidential information will only leave the HSCIC in very rare circumstances, such as in the event of a civil emergency.